Hans Boodt, mannequin,wall,faces,quote"people with disability are not props for your philanthropic posts"

People with disability, are not props for our “philanthropic posts’’

 

When I became “disabled” due to an illness after proper 20yrs of living a life of privilege ability my life and not just my life alone but the life of my family changed too. While I am on the very difficult path of self-acceptance, my father is not okay neither do I think he will ever be after his daughter’s life took a complete 360°turn.

In the early years of my disability I decided to volunteer in an organization that houses people like me, the only organization here that takes care of their needs and provides training and education but the stark difference is that they are worse than me physically, mentally, emotionally and economically; this being the only life they have known. Continue reading

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The Hiprocacy of judgement

“But you don’t look disabled.”

Both baba and I stared with an apparent look of surprise, disbelief, and sadness at him I was shocked with loss of words and baba was quiet too. Some people think saying nothing is a sign of approval, he did the mistake too as he launched into the topic of “well-meaning” advice as I controlled my angry tears from falling. Continue reading

#my story

 

There are numerous benefits of education and equally many critics exist too but that’s the discussion I will gladly leave out today. Today I will only acknowledge the good of education, especially in my context. At the time I fell ill and realized I had now to live with a disability; I had only completed 12 Std and was preparing for the medical entrance examination. My confidence, self-esteem, self-image was all time low. Continue reading

Tired but trying

They say “what doesn’t kills you makes you stronger” but they are so wrong what doesn’t kill you just does not kill you and that may be all you get. Except sometimes what does not kill you maims you, cripples you, leaves you weak and makes you angry, sad; feel cheated.

Some things that didn’t kill me did come so close that it’s still damaging. They didn’t all make me better some made me worse and bitter. Isn’t that okay, cant something just break you? The world wants us to believe that admitting defeat makes us weak. However, you just can’t be positive all the time we may be angry, frustrated, sad, annoyed, scared, anxious or any of the numerous negative feelings. Having feelings does not make a negative person. It only states how human you are. Continue reading

all about me

 

That’s Dorian Grey?  It’s the 100th time now, said my friend with very apparent exaggeration and a genuine look of disgust. This, however, was a ruse to recommend me the latest book she was reading, a love story, “Me before you” by Jojo Moyes. I don’t mind rereading and genres don’t concern me. Hence I thought I’d give it a chance but I don’t trust her taste therefore when it wasn’t available for free on the world wide web and with talks going on for turning it into a movie I skipped buying it telling her I’ll watch the movie and telling myself I’ll hold on to my money for now.

That was in 2013 and I had forgotten all about it until one fine day in 2017 the internet informed me of the movie and I watched it. Continue reading

i am you – a page from my journal

Please stop looking at me like that your gaze stab and bleed me, it hurts so bad but I know I can’t put my thoughts into words or explain anything to you before I get all rallied up in emotions, you that can understand it all but don’t want to; you that are the society of which I am a part too.

I understand you are sad to see me in such a sorry state but are you “sad”? Isn’t it acceptable anymore for a person to fall sick; being vulnerable is what a human is I am a human seems you are don’t know or accept the sad part of reality; makes me question are you really that delusional. Continue reading

Dignified & Correct terminologies- words are powerful

Words have an immense power they can easily make or break a person. A word is very powerful and we often underestimate its power.
Of late I have been reading a lot of blogs describing people with disability as “differently able” which angers me a lot because I want to be referred to as person first not different because I have a disability. This is my opinion and opinions are not facts that can’t be proved wrong. Continue reading